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The following touching story was
contributed by one of our readers, Donnette Liotta.
For My Paco
I am a healthy twenty-three year old, born with normal
vision, normal hearing and normal speech. My twin sister, Dawn, was not
born so lucky. My mother was very young when she had given birth to my
sister and me. Because we were born so early we were placed in incubators
until we were three weeks old. While in the incubator, the doctor
administered too much oxygen to my sister. She was later diagnosed with
cerebral palsy, a nervous disorder which causes a malfunction in the sensory
motor skills and also brain damage. She had undergone several unsuccessful
surgeries to restore her sight which was completely gone in her left eye and
only 68% detectable in her right eye. Along with a slow developing brain,
and legal blindness, it was also determined that she was legally deaf in her
right ear. She had to wear braces on her legs and she had to walk with
crutches. She stuck out like a sore thumb connected to all these
contraptions, often causing people to stare and point.
While growing up a twin, I felt my identity was not my
own. I wanted to just be Donnette, NOT DAWN'S TWIN SISTER. We lived
in a small neighborhood where my sister was the only 'different' child. We
were both constantly picked on, and we never had any friends because of my
sister's condition. I began to loathe my sister, and I did everything and
anything to get her into trouble to get back at her being born mentally retarded
and physically disabled.
I felt like she was a constant thorn in my side.
I was embarrassed to be seen with her, so I made fun of her right along with the
other children. When I turned twelve my mother was so disgusted with my
behavior towards my sister, she figured I was old enough to know better, and
that I should love my sister for who she is, for that is the way God created
her.
My mother threw me in my bedroom and gave me a thick
yellow book which looked to me like a photo album. What I saw in that book
changed my life and my attitude about the way that I viewed my sister and other
handicapped people like her.
There were numerous baby pictures of my sister and I
dressed alike, the only difference: Dawn was hooked up to tubes and needles and
machines. She had her hands and fingers taped so that she would not
compromise the patch on her eye from surgery. She looked like a mummy.
I looked small and peaceful. There were also several pictures of the two
of us in the hospital until we were three years old. Once again, Dawn was
wrapped up in a glorified mummy outfit, with tubes and needles attached to her
everywhere. If you looked closely, you could see the pain reflected in her
eyes. The picture that stood out the most was a Polaroid snapshot of the
two of us in the crib hugging each other. The caption below read, 'I am so
happy to get a visit from my twin sister, Netti. The doctors make me cry.
She makes me laugh.'
I noticed one common factor in all of the pictures:
even though she was in a great deal of pain, and suffering so much, this baby
girl, who some would call a handicapped retard, smiled so big for the camera.
I realized then what my mother was trying to show me. I felt ashamed at
the way I treated her, and I cried myself to sleep.
Later that evening, my sister crawled over and woke me
up for dinner. I kissed her and hugged her and profusely apologized for my
behavior. She looked at me with uncertainty in her eyes. I knew she
did not know what I was talking about. But I knew, I knew.
From that moment on, I was my sister's protector.
No one was going to hurt her for any reason. If the children in the
neighborhood did not want to play with us because of my sister, so be it.
We would play with each other. We did not need them. We were
inseparable.
Now as I look back, I realize that I never once took my
sister's feeling into consideration. I did not want to know my own
sister's story of why. I was so caught up in my own selfishness that I
never saw her pain. I never put myself in her shoes. I never had to
struggle to do normal, everyday activities. I could run and jump all on my
own, without crutches. I never knew how blessed I truly was, or how
special Dawn is.
I know that I made it worse for her, because she longed
to be 'normal' like me. Strangers do not understand her because they do
not know how to deal with her, nor do they have experience dealing with her, so
they treat her indifferently. But I am her sister, her blood, and I should
have been there for her straight from the beginning. I am her other half,
just as she is my other half. When Dawn hurts, I hurt: that is the
unbreakable bond Dawn and I share. After all, I AM DAWN'S TWIN SISTER, and
she is my world.
'I love you, Paco!!'
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The
Day I Found Out
I was an only child. For some reason it never
occurred to me that I should have brothers and sisters, or did I ever miss not
having them. I was a happy child never feeling deprived of anything. Since I was
the center of my parent’s devotion I was a contented child, happy with my
life.
My earliest memories are of being kissed and
hugged. I remember my Mama’s soft, sweet fragrance. She smelled like
"cashmere bouquet", the talcum powder she liked to use.
Perhaps somewhere in the back of my young mind
I understood I was an adopted child and as such would not have brothers and
sisters. When I was about 6 years old my friend Patsy informed me one day that I
was adopted. I began to cry and my friend Billy T. G. rode me home on his
bicycle. My mother took me on her lap and held me as I cried, while telling her
what had happened.
She asked if it would make any difference to
me and I said, "uh huh". In other word, yes it would. She didn’t
respond but just continued to hold me and hug me, so I knew is was true. She
never confirmed or denied it and my father never spoke of it to his dying day.
As far as they were concerned I was theirs and
later my mother would tell me she couldn’t believe I didn’t actually come
out of her body. I was 10 days old when my mama and daddy got me.
Patricia Louise Carberry
Missouri, USA
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My
Earliest Recollections of My Father
When I was very young I remember playing with the girl next door, making mud
cakes. We lived in a small house behind the high school in Alton. One day my dad
took our picture, mud cakes and all.
My dad took a lot of pictures with his blue Kodak camera. He developed the
pictures himself in our basement. I remember helping him. All the lights had to
be turned out while we transferred the negatives from one pan to the other. It
was a lot of fun for a small boy.
My dad often came home from work for lunch, I suppose because it was a way to
save money since it was during the depression. While he was eating lunch one day
I drove nails into three of his tires. Not too long after he left to return to
work he called home saying that he had just pulled into a service station with a
flat tire, only to find out he had three flat tires.
When my dad questioned me about the flat tires I said, "when you
had a flat tire last time, and you were pumping it up with air, and I wanted to
help, you said the next time you had a flat tire you would let me pump it up. (I
guess I just didn’t want to wait.)
Some time later, my dad was going fishing with one of his friends. I wanted
to go with him, so while he was getting ready, I got in the back seat. When they
got ready to go they tried to get me out of the back seat and I just "held
on for dear life". Finally, they gave up and let me go with them. I
reportedly later told my mother, " the next time you want to go somewhere
just get in the back seat and hold on".
One of my best memories was going to the movies with my dad. We saw a lot of
Gene Autry movies. I remember riding on his shoulders on the way home, just the
two of us. My dad later would tell over and over the story of how I would hold
his hands and sing to him a song I learned from one of the movies. I would sing
"Ou R My Ucky Star. My Ucky Star is What Ou R". He never forgot me
doing that. Those were good times.
These memories are from my short life before I was in the first grade. I know
this for sure, because one day right before my sixth birthday my mother told me
that I was going to sleep with my dad that night. She said we were going away. I
didn’t know what all that meant. I remember my dad breathed deeply in his
sleep and snored a little. The next day we moved in with my grandparents in
another town.
I missed doing these things with my dad.
Anonymous
Missouri, USA
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MY
WILD CHILD
I think most everyone has an idea in their head about what life will be like
when they have children. I was told at the age of 22 that my chances of
getting pregnant were very slim. I practiced my "maternal
instincts" on nieces, nephews, and children of friends.
At the age of 34, much to my delight and surprise, I became
pregnant. As the pregnancy progressed I imagined fun-filled days in the
park, the excitement of Christmas mornings, baking cookies for school parties,
and taking my child to Sunday school to instill faith in and a love for the
Lord.
One aggravating thing after another went wrong during my pregnancy. I got
a pinched nerve in my back, my blood sugar level got too high, I suffered a
kidney stone attack in the eighth month and then developed toxemia. The
doctor couldn't get my blood pressure down to a safe level so decided to induce
my labor; thus, my son was born three weeks earlier than planned.
I knew there was something "different" about him from the very start.
We were kept in the hospital over night and the baby shared my room. I was
on an "adrenaline high" and was wide awake for most of the night. I
would get the baby out of his bed and try to cuddle with him; I got no response
from him at all. He seemed more content to be in his own bed than snuggled
up with me. I attributed this to the fact that he was three weeks early
and just needed time to adjust.
We came home from the hospital and things seemed just fine. That same
night, as soon as I went to bed, the baby started crying. And it seems
like he didn't stop for five months. Between working full time and being
kept awake by a crying baby, I got very little rest. I became worn out,
depressed, and filled with feelings of guilt. I kept thinking that I must
be doing something wrong as a parent or I would have a happier baby.
During the sixth month or so he finally stopped crying all the time. But I
still couldn't get him to bond with me. I continued to be filled with
guilt. What could I do to get this child to accept me?
The next four years went by and there are several happy memories found in
them. But the rest of the time was just a constant battle. My son
seemed more than willing, eager in fact, to butt heads with me on EVERY
issue. I had never had to deal with such a child and didn't know anyone
personally who had.
Finally, at his kindergarten registration and evaluation in the spring, the
school secretary suggested I have him put on Ritalin before school started that
fall. I took him to the family doctor who didn't want to medicate him
without the opinion of a child psychiatrist, so off we went for an
evaluation. After filling out several forms and getting the papers
"graded," it was determined that my son is ADHD (Attention Deficit
Hyperactivity Disorder) and ODD (Oppositional Defiant Disorder). As bad as
this sounds, I left the doctor's office feeling like a weight had been lifted
from my shoulders. It wasn't ME! I really wasn't a BAD mom! I
thought, "Now we know what is wrong so we can FIX it!" Oh what
joy! I soon discovered, much to my dismay, that these
problems aren't that easily solved. The Ritalin helps to keep him in his
seat and to focus a little easier. Now they are considering having him
tested for a learning disability as well.
I now realize that I need to find new ideals on what our family life will be
like. Those fun-filled days in the park end with tantrums when it's time
to leave. Those exciting Christmas mornings are a let down because he
really wanted THAT instead of this. He acts up when I participate in
classroom activities. He is quite often anti-social and is such a
distraction, that I gave up taking him to Sunday school.
I have quit associating with a few of my friends because not only did I get NO
moral support from them, I got nothing but criticism on my abilities as a
parent. They are of the mistaken belief that all I have to do is
"crack down" or "get a grip on" my son NOW or he will only
get worse as he gets older. I have been told (by them) that Ritalin is
just a placebo drug, there is no such things as these disorders and all he needs
is a good "@#* busting."
They have no idea of the prayers I've prayed or the tears I've cried over my
son's condition. They have no idea how many trips to child psychiatrists
and counselors we have made. They have no idea of how it feels to have
your dreams shattered when you can't even take your child to a movie or a
restaurant because you never know what may trigger a "meltdown."
If you have never experienced problems such as these with your own child, please
remember to thank God daily. If you know someone who is dealing with a
child such as this, please pray for them and offer some sort of support.
Don't judge until you have walked a mile in their shoes.
I thank God that as a family, we DO have some fun times and togetherness.
Underneath all the pent up anger rolling around in my five and a half year old,
he CAN produce a giggle now and then. I thank God when my son comes up to
me unexpectedly to give me a hug and a kiss and says, "You're the best
mommy in the whole reeled." I know that somewhere out there are
parents who do not even get THAT much from their "problem
child." My heart goes out to these families and I always remember
them in prayer.
T. Davis
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A
Tribute to My Dad
My dad was diagnosed with diabetes
at the age of 26. From the very beginning he had trouble keeping his blood
sugar levels on an even keel. I can't even remember now how many times I
witnessed his insulin reactions or watched the EMT's take him away by ambulance.
Dad was a sports fanatic when it came to basketball and baseball. He coached the
baseball teams for my two older brothers. By the time my younger brother
was old enough to play baseball, dad was experiencing some other health
problems. Instead of being committed to full-time coaching, he opted
instead to help out by being
an occassional "ump."
Unbeknownst to his family, dad was beginning to suffer from dizziness and a lack
of coordination. Never being one to complain, he kept these symptoms to
himself. It began to be apparent to other people as time went by.
The first time I personally remember anyone commenting on his condition was at a
baseball game when my dad was umping second base. He was dizzy and
staggered several times on the field and was accused of being drunk by the other
team and their fans.
Shortly after this, his condition took a turn for the worse. He would fall
in mid-stride. I remember being in the kitchen once when he fell
backward. He didn't even bend at the waist on his way down to try and
protect his head. He just fell straight back like a felled tree. He was
also having more trouble with his legs and was using a cane as a walking aid.
We all knew there was "something wrong" with dad but were uncertain as
to what it was. The medical profession didn't have the sophisticated
testing then that they do now. The family doctor said he thought it was
nerve damage from dad's blood sugar levels getting dangerously high so often.
At the age of 41 my dad could no longer work. Thus began the process of
trying to get disability. By this time he was using a walker and occasionally
a wheelchair.
Over the course of the next several years dad's condition steadily worsened; his
kidneys were beginning to fail. He was hospitalized to get a stint put in
and to begin dialysis. His brothers and sisters were tested to see if any
of them were a close enough match to be a kidney donor.
While we were waiting for the "potential donor" test results, a
neurologist came in and told dad he had amyotropic lateral sclerosis--ALS--also
known as Lou Gehrig's disease. They had also determined that dad's oldest
brother was a good match to donate a kidney. Dad's brother was in his
early 60's at this time.
After giving the matter serious thought, dad decided to cancel the kidney
transplant. He said he just couldn't justify putting his oldest brother
through such a serious surgery when it was now a known medical fact that his
condition was terminal anyway.
We understood his line of reasoning and respected his decision. So began the
"beginning of the end." This decision was made in
November. Dad continued with dialysis for several weeks afterward.
He finally decided to stop going for dialysis. Naturally his condition
continued to decline at a rapid rate. He admitted himself into the
hospital on March 24, 1983. He passed away in the wee hours of the
25th. He was only 51 years old.
Several months went by and I was adjusting to the loss. I had to have a
physical for my job. This included filling out paperwork on my medical
history as well as those of my immediate family. The doctor began going
over the paperwork and case histories I'd given him. He asked several
questions about dad's illness (the ALS) because he'd never personally had a
patient with that ailment.
After explaining the circumstances of my dad's illness and subsequent death, Dr.
Anderson looked me in the eye and said, "Your dad was a very brave
man. It would have been an honor to meet him. You must be very
proud." Up until that point in time I'd not thought of my dad in that
light. I swallowed the lump in my throat and thanked Dr. Anderson for
opening my eyes to the person my dad was BEYOND being a husband and father.
And, daddy, I want you to know, I AM proud of you!
T. Davis
Copyright 1999